turtlepowerbuddhaface asked: Just joined tumblr a couple of weeks ago and I am so glad I found this! I was born with hydrocephalus and have also been diagnosed with dandy walker syndrome. In total I have had 15 brain surgeries. I would love to know other stories and know how you all cope with it. Thanks guys ^__^
Hello! I’m glad you found us, too. :)
I just have hydrocephalus myself. I think I have an about me page somewhere, but I should probably update it….
I’m sure some followers would be happy to share their stories, everyone’s pretty good about that. :)
<3 We’re here if you ever need to talk.
A freshly human Little Mermaid seems to have found her voice enough to send an important message to you and your family. :)
Want to be involved? Email us at ProjectPixieDust@gmail.com to find out how! Also, don’t forget to look us up on Facebook, and Twitter.
Did you or your child enjoy this video? This Pixie shared their contact info with us, please - let us know if you have any messages you’d like relayed!
Stitch loved Boozle Bear…. probably a bit too much!! Off to clean off the Stitch slobber before giving him away…. #hydrocephalus #projectpixiedust #stitch
We should totally do a sh*t people say to hydro patients video!!
Mod note: YES. I totally agree!!!!
I can’t see what it is on mobile, could you message me what it is?
Otherwise, I’ll publish it when I’m on my laptop.
My wonderful girlfriend Hayley and I have a lot to thank this blog for as it through here that we first got together through both being Hydrocephalus sufferers. Unfortunately, Hayley lives in the USA whilst I live in the UK. Long distance relationships can be very difficult due to time differences, busy schedules and of course- huge expenses! It would mean the world and more to us if you could donate anything at all towards Hayley’s plane ticket to England (the rest would be for spending money, her passport etc) even if it’s just a tiny amount. Thank you so much in advance.
Mod note: Wait. Wait, wait.Holy Mickey waffles….YOU TWO ARE TOGETHER?! HOLY COW! WHY DID I NOT KNOW, YOU’RE BOTH FIRED. How fantastic! :-) :-) :-) Yes, thank you, I’ll take all the credit ….
Kidding. But how fabulous. Very happy for you two. Hopefully you get to visit soon!!
